Cystic Fibrosis

cystic fibrosis

Comprehensive Care

We are a nationally accredited cystic fibrosis care center that cares for both adult and pediatric patients. The Adult Cystic Fibrosis Center was founded in 1993 and accredited by the Cystic Fibrosis Foundation shortly thereafter in 1996. Starting from the ground up, we have built a program of excellence that is focused on patient care. We have grown to become one of the largest adult centers in the Midwest region. We are the only adult center in the Kansas City metropolitan area and we serve an extensive patient population in western Missouri and eastern Kansas. The Pediatric Cystic Fibrosis Center has cared for patients for over 30 years and is passionate about providing patients the most comprehensive and aggressive preventive care possible. We take a highly personalized approach and will partner with you for the care of your child. We work from a philosophy that maintaining excellent health as a young patient affords the best opportunity for longevity, better quality of life and opportunities to benefit from new therapeutic discoveries emerging from CF research.

Our Mission

To grow old with our patients by providing outstanding patient care, educating family, patients and the community regarding cystic fibrosis management and looking for treatments of tomorrow by participating in scientific research today.

Treatment Team

  • Five board-certified pulmonary physicians in the adult center and one board-certified pediatric physician in the pediatric center.
  • Dedicated and experienced nurses, respiratory therapists, dietitian, social workers, pharmacist and psychologist.
  • Additional specialty collaborators include: gastroenterology endocrinology, otolaryngology (ENT) and infectious disease.

Research

At an academic medical center, researching therapies of tomorrow is vital to our mission. With both basic science and clinical research, our program focuses on developing and studying novel medicines and therapies. We have two dedicated research coordinators to aid our patients in clinical research trial opportunities as well.

Facilities

Built in 2011, the state-of-the-art medical office building is home to our CF center. This outpatient facility provides our patients with a comfortable and accessible environment to seek care. We also provide inpatient care for CF patients when needed. Our facility has a dedicated CF inpatient unit staffed by nurses, respiratory therapists and dietitians all experienced in cystic fibrosis care.