Adult Congenital Heart Disease

Heart care for a lifetime

Congenital heart disease is any type of problem with the heart structure that is present at birth. According to the Adult Congenital Heart Association, such problems happen in about one in 120 newborns.

Some of the most common problems

  • Chamber problems
  • Holes in the heart
  • Valve problems
  • Vessel problems

About a million adults in the United States are living with heart defects. About 10 percent of the defects aren’t found until adulthood. Many adults with heart defects can live long lives without limits or symptoms. About half are at risk for more problems. For more information on each condition, visit Congenital Heart Defects in our online health library.

Obstructive defects

Septal defects

Cyanotic defects

Other defects

Our doctors and nurses can provide expert diagnosis, treatment and monitoring of congenital heart disease. They can become your partners in managing your disease throughout your life.

Why choose The University of Kansas Health System

Congenital heart disease can affect your choice of career, decisions on pregnancy, physical activity and life plans. We can provide you with information about maintaining your health, reducing your risk for heart disease and choosing occupations suitable for your condition.

Our specialists include dedicated physicians with deep experience in this subject. The nurses who work in this program have the experience to understand your concerns and know what to expect.

Because we’re an academic medical center, you'll benefit from a dedicated team of experts. It includes cardiologists, surgeons, nurses and others. You will see both your cardiologist and one of our experienced clinical nurse specialists at every clinic visit. And the nurses are on call any time to address your concerns. Your cardiologist can consult with other leading specialists who are often located across the hall instead of across town. We also have regular conferences with Children’s Mercy Hospital to coordinate care for younger patients and those in transition to adulthood.

We also benefit from a close relationship with the hospital’s Pulmonary Vascular Disease Center, which has a dedicated clinic for pulmonary hypertension – a problem often associated with adult congenital heart disease.