Palliative Care Resources
Caring Connections - National Hospice and Palliative Care Organization (NHPCO) provides resources and information to help people make decisions about end-of-life care and services before a crisis.
Family Caregiver Alliance - Not-for-profit organization about the needs of families and friends providing long-term care at home.
getpalliativecare.org - Educational site sponsored by the Center to Advance Palliative Care (CAPC).
Hospice Foundation of America - Information about hospice care and links to hospice locations.
National Family Caregivers Association - This association educates, supports and empowers those who are caring for loved ones with chronic illnesses or disabilities.
Printed materials in our library
- Patients and families can visit the health system's Inpatient Cancer Care Patient and Family Resource Room in Unit 42 for more information, including:
- "The Journey Through Grief: Taking Life One Day at a Time" and "Saying Goodbye to Someone You Love" — booklets created by The University of Kansas Health System to help family members understand the dying process and normal grief reactions.
- "What Ya'll Gon' Do With Me?: The African-American Spiritual and Ethical Guide to End of Life Care" — a perspective on end-of-life issues, written by Gloria Thomas Anderson, MSW, an African-American social worker at Kansas City Hospice.
- "Caring Conversations" — a resource by the Center for Practical Bioethics in Kansas City that helps patients and families have meaningful conversations about end-of-life decisions.
- "Grieving, When You Lose Someone Close" — a booklet for teens and young adults from Care Notes.
- "Stepping Stones" — a memory book by the Ronald McDonald Corporation and Solace House that leads teenagers through exercises for remembering loved ones.
- Mister Rogers' "Talking with Young Children about Death" — a booklet by family communications for adults to help children deal with death.
- "What's All This Stuff?" — a children's book by a nurse at The University of Kansas Health System that explains the technology in intensive care units.
- "How to Support Children When Their Loved One is Dying" and "Facilitating Meaningful Experiences: Helping Children Cope with a Life Threatening Illness or Death of an Adult" — booklets from Fairview Health Services in Minneapolis, MN.