Resources

NCCN Guidelines for Patients

www.nccn.org 
The National Comprehensive Cancer Network (NCCN) provides a wonderfully detailed guide for breast cancer patients. This guide has over 100 pages of information on initial diagnosis, stages, treatment, side effects, follow-up tests, and questions to ask.

American Cancer Society

www.cancer.org
This site provides basic information about cancer, what causes it, as well as in-depth information about specific types of cancer, their risk factors, early detection, diagnosis, and treatment options.

Living Beyond Breast Cancer

www.lbbc.org
This organization is an educational and support organization. They provide teleconferences, a survivor's help line and a selection of pamphlets. Their annual conferences include one for women with metastatic disease and one for young women.

Breastcancer.org

www.breastcancer.org
This site provides information about symptoms and diagnosis, treatment, and side effects, day-to-day matters, and lowering risk. In addition it offers a blog and discussion boards. A professional advisory board reviews medical information on the site. A Spanish version of this site is available at www.breastcancer.org/es.

Susan G. Komen for the Cure

www.komen.org
This international activist organization provides funds to further the breast cancer fight. Consult the section labeled "Understanding Breast Cancer" for a variety of resources.

Y-ME

www.y-me.org
This organization offers information and support. The 24-hour toll-free support service is called "Your Shoes" and is staffed by survivors: 800-221-2141. Interpreters are available for 150 languages.

Breast Cancer Stories

www.BreastCancerStories.org
This is primarily a website for the sharing of stories, both patient and caregiver stories. This large collection of breast cancer stories can be searched by location, age, type of breast cancer, type of treatment, marital status, and ethnic background. Privacy is maintained by using only first names and state or country.

FORCE: Facing Our Risk of Cancer Empowered

www.facingourrisk.org
FORCE provides information and support for those women who are at high risk or affected by hereditary breast and ovarian cancer. They have a newsletter and host an annual conference.

Young Survival Coalition

www.youngsurvival.org
This is a network of breast cancer survivors, supporters, and advocates; they focus on the issues that concern women with a premenopausal diagnosis.

HER2 Support Group

www.her2support.org
This site contains extensive general breast cancer information as well as focused HER2 topics. It also offers very active message boards.

Triple Negative Breast Cancer Foundation

www.tnbcfoundation.org
This organization aims to raise awareness and support research for triple negative breast cancer patients.

Metastatic Breast Cancer Network

www.mbcnetwork.org
This advocacy network is dedicated to the unique concerns of the women and men living with metastatic breast cancer. Their website includes a message board and selected resources.

BRAINMETSBC.ORG

www.brainmetsbc.org
This website provides a place to learn about brain metastasis from a patient perspective. It includes personal stories, interviews with doctors, and information on clicinal trials.

KnowBreastCancer.org

www.KnowBreastCancer.org
This is the website of the National Breast Cancer Coalition. This advocacy group seeks to influence public policies surrounding breast cancer research, diagnosis, and treatment. It takes stands on controversial issues.

Breast Cancer Trials

www.bctrials.org
This website is designed to help patients easily find a breast cancer clinical trial. Patients can enter their health history and learn about trials that match their history. Alternatively, by going to the Quick Views section patients can browse trials by selecting a specific category. This feature may be particularly helpful for triple negative and inflammatory breast cancer patients since there is a subcategory for each of these types. This website includes all trials listed in clinicaltrials.gov and cancer.gov as well as some additional trials. It can also provide email alerts when new trials fit your profile.

Are Your Breasts Dense?

www.areyoudense.org
This website provides information about dense breast tissue and how it can affect a mammogram's ability to detect breast cancer. Also provides information on legislation requiring health care providers to inform patients when they have dense breasts.