Leading Care for Polycystic Kidney Disease

Comprehensive diagnosis and treatment

The specialists on polycystic kidney disease (PKD) team at The University of Kansas Health System in Kansas City are caring and knowledgeable experts invested in the proper diagnosis and continued care of people living with PKD. Our clinicians work closely with patients to accurately diagnose, correctly stage and actively monitor the progression of PKD. Our team provides a full spectrum of excellent care that includes the latest options, further consultation and the opportunity to participate in clinical trials as they become available.

                

   To connect with a PKD specialist
   and make an appointment, call 913-588-6048.

Tolvaptan: an exciting treatment breakthrough

The University of Kansas Health System was among the nation's first providers of tolvaptan, the first FDA-approved treatment to slow kidney function decline in adults with rapidly progressing polycystic kidney disease.

Until now, there was no direct treatment beyond managing symptoms and associated conditions, such as hypertension and urinary tract infection. With the approval of tolvaptan for PKD treatment, we can now do more, working with patients earlier in their disease progression in the hopes of slowing kidney function decline.

Our physicians and researchers have been studying this newly approved drug for more than a decade. We offer years of experiences with tolvaptan, its side effects and the dosing process.

Our PKD clinic has regular openings. Physicians may refer patients, and patients may self-refer, by calling 913-588-6048.

A specialty clinic

We offer a comprehensive clinic dedicated to the care of patients with PKD. As one of only four National Institute of Health-designated PKD research and translation core centers, we provide access to the latest clinical trials and treatments to improve the lives of individuals with PKD. Our board-certified nephrologists have extensive experience with PKD and tolvaptan treatment. In this weekly specialty clinic, we work closely with patients to accurately diagnose, correctly stage and actively monitor the progression of PKD.

We offer PKD clinic on Thursdays from 1-5 p.m. Services include:
  • Clinical trials
  • Complete continuum of kidney care
  • Diagnosis
  • Diagnostic imaging
  • Dialysis
  • JYNARQUE™ (tolvaptan) treatment
  • Transplant listing, surgery and continuum of care

The future of PKD treatment and research

Progress in PKD research continues to advance. Although potential treatments are focused largely on managing lifestyle and limiting other risk factors that could harm the kidneys, our team is optimistic that additional effective and safe treatment options are on the horizon.

Working within one of only four National Institute of Health-designated research and translation core centers, our PKD physicians have access to the most advanced diagnosis and treatment options in the world. We provide a complete continuum of kidney care, including dialysis and transplant.

Learn more about the latest PKD clinical trials available through our partnership with the University of Kansas Medical Center.

Our experts

Learn more about The University of Kansas Health System's leaders in polycystic kidney disease diagnosis and treatment.
As PKD patients progress toward transplant, we partner with the leading specialists of our Center for Transplantation to provide advanced, multidisciplinary care that yields the best patient outcomes.

Living well with kidney disease

Diagnosed with polycystic kidney disease, Jennifer Branch sought the region’s best resources for lifesaving care. She found The University of Kansas Health System, where dedicated caregivers and researchers focus on PKD diagnosis, education and treatment. “People can live a long, healthy life with kidney disease,” Jennifer said. “My team is caring, knowledgeable and invested. I feel wonderful.”

Learn more about Jennifer's journey as she shares her perspective on living life with PKD while awaiting transplant. Read her story.



Hear from transplant surgeon Timothy Schmitt, MD, and kidney recipient Jennifer Branch as they discuss our comprehensive, patient-focused transplant program.