Is it PKD?

Many people who have PKD go undiagnosed. At the early stages of the disease, there are often no symptoms. Signs or symptoms of PKD include:

  • High blood pressure
  • Blood in the urine
  • Pain in the back or abdomen
  • Urinary tract infections
  • Kidney stones

Imaging tests such as an ultrasound, computed tomography (CT) and magnetic resonance imaging (MRI) can be used to diagnose PKD.

Polycystic Kidney Disease

Polycystic kidney disease (PKD) affects hundreds of thousands in the United States. PKD is a genetic disease that causes fluid-filled cysts to grow in the kidneys. Over time, as the cysts continue to develop, the kidneys enlarge and compress other organs in the body, often causing pain and fatigue.

PKD affects people differently, and it can be a serious condition. More than 50% of those who have PKD will develop kidney failure by age 50. Currently, dialysis or a kidney transplant are the only treatment options for kidney failure.

If you believe you are at risk for PKD or have been diagnosed with PKD and would like a second opinion, call 913-588-1227 or toll free 844-323-1227. You can also request your consultation online. The University of Kansas Health System provides care to those with polycystic kidney disease in Kansas City and surrounding areas.

Types of PKD

There are two types of PKD. Autosomal dominant polycystic kidney disease (ADPKD) is the most common form of PKD. ADPKD often affects several generations within a family because parents who have the disease have a 50% chance of passing it on to their children. However, about 10% of people who are diagnosed with PKD don't have a family history of the disease.

A rare form of PKD, autosomal recessive polycystic kidney disease (ARPKD) affects approximately 1 in 20,000 children. Complications related to ARPKD may cause death in the first month of life. One-third of those children who survive the newborn period will need dialysis or a kidney transplant by age 10.

Your partner in PKD care

If you or your loved one has PKD, trust the experts at The University of Kansas Health System in Kansas City to partner in your PKD care. Our multidisciplinary teams can give you information about polycystic kidney disease and offer more treatment options to help you live life more fully.

At The University of Kansas Health System, we provide:

  • A nationally recognized, complete continuum of kidney care, including dialysis and transplant

  • Board-certified specialists with PKD experience to predict the onset of end-stage kidney failure

  • A multidisciplinary approach, including shared care with referring physicians

  • One of the nation's top kidney research facilities, offering research initiatives and clinical trials that bring the latest discoveries to patient care

Living well with kidney disease

Diagnosed with PKD, Jennifer Branch sought the region's best resources for lifesaving care. She found The University of Kansas Health System, where dedicated caregivers and researchers focus on PKD diagnosis, education and treatment. "People can live a long, healthy life with kidney disease," Jennifer says. "My team is caring, knowledgeable and invested. I feel wonderful." 

The Kidney Institute: A world-class research facility

The Kidney Institute at the University of Kansas Medical Center is an internationally recognized research center that supports basic, clinical and translational kidney research. The institute leads major advances in the prevention and treatment of kidney diseases, including polycystic kidney disease, progressive renal diseases, and disorders of kidney development and metabolism.

Dialysis: Maximize your quality of life

At The University of Kansas Health System, we are committed to extraordinary, compassionate care. Our multidisciplinary dialysis team includes physicians, registered nurses, dietitians and social workers to provide education and support, and to help you manage your condition and maximize your quality of life.

Dialysis is offered at 2 convenient locations:

RAI Dialysis Care Center
6401 Parallel Parkway
Kansas City, KS 66102

RAI Dialysis Care Center
4720 Rainbow Blvd., Suite 200
Westwood, KS 66205

To schedule an appointment, call 913-588-1227 or toll free 844-323-1227.

Choosing a transplant center

The Center for Transplantation at The University of Kansas Health System offers a nationally recognized kidney program.

  • Ranked among the top 50 kidney programs in the U.S.

  • Significantly shorter organ wait list times (26.2 months average median wait time vs. 29 months in the region and 57 months in the nation)

  • Highest 3-year success rate for kidney transplant survival among transplant centers in Kansas, Missouri, Nebraska and Iowa

  • Largest organ transplant program in the region

  • More than 1,800 kidney transplants performed

Our kidney transplant team is committed to providing outstanding, personalized care from your initial evaluation to your transplant procedure and for the rest of your life. Our expert transplant surgeons and transplant medicine specialists offer innovative surgical care for highly complex procedures using state-of-the-art techniques and technology.