Palliative Care Resources

Access materials for more information

Caring Connections
National Hospice and Palliative Care Organization (NHPCO) provides resources and information to help people make decisions about end-of-life care and services before a crisis.

Family Caregiver Alliance
Not-for-profit organization about the needs of families and friends providing long-term care at home.
Educational site sponsored by the Center to Advance Palliative Care (CAPC).

Hospice Foundation of America
Information about hospice care and links to hospice locations.

National Family Caregivers Association
This association educates, supports and empowers those who are caring for loved ones with chronic illnesses or disabilities.

Printed Materials In Our Library

Patients and families can visit the health system's Inpatient Cancer Care Patient and Family Resource Room in Unit 42 for more information, including:

  • "The Journey Through Grief: Taking Life One Day at a Time" and "Saying Goodbye to Someone You Love" — Booklets created by The University of Kansas Health System to help family members understand the dying process and normal grief reactions.

  • "What Ya'll Gon' Do With Me?: The African-American Spiritual and Ethical Guide to End of Life Care" — A perspective on end-of-life issues, written by Gloria Thomas Anderson, MSW, an African-American social worker at Kansas City Hospice.

  • "Caring Conversations" — A resource by the Center for Practical Bioethics in Kansas City that helps patients and families have meaningful conversations about end-of-life decisions.

  • "Grieving, When You Lose Someone Close" — A booklet for teens and young adults from Care Notes.

  • "Stepping Stones" — A memory book by the Ronald McDonald Corporation and Solace House that leads teenagers through exercises for remembering loved ones.

  • Mister Rogers "Talking with Young Children about Death" — A booklet by Family Communications for adults to help children deal with death.

  • "What's All This Stuff?" — A children's book by a nurse at The University of Kansas Health System that explains the technology in intensive care units.

  • "How to Support Children When Their Loved One is Dying" and "Facilitating Meaningful Experiences: Helping Children Cope with a Life Threatening Illness or Death of an Adult" — Booklets from Fairview Health Services, Minneapolis, Minnesota.